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Information regarding personal data processing

Both data privacy and information confidentiality are important aspects for the BarcelonaBeta Foundation. This data protection policy establishes how personal data obtained are treated and it may vary with time due to the possible legislative, jurisprudential changes, or changes of the criteria followed by the Spanish Data Protection Agency and/or the competent authority at any time. For this purpose, the BarcelonaBeta Foundation reserves the right to modify this policy to adapt it to legislative or jurisprudential developments that are in force at the precise moment of website access.

Date of last update: 20/07/2020

 

1.- Identification of the holder responsible for the processing:

The holder responsible for data processing:
BarcelonaBeta Brain Research Foundation for Research into Alzheimer’s Disease, (hereafter referred to as, the BarcelonaBeta Foundation).
Calle Wellington, 30, Barcelona (08005).
VAT No. G-65895401
Email gdpr@barcelonabeta.org

 

2.- Purpose of processing, legal basis and storage periods:

2.1. FORMS WEB

The personal data that you provide us through any one of the forms enabled at the web or any one other means of contact indicated, will be treated with the purpose to attend your questions and requests. When necessary, we will send your request internally to the appropriate department for its correct management.

We will use your data to send you communications of interest if you have subscribed to our bulletins or have marked the corresponding box enabled at this effect.

We inform you that you can unsubscribe from this type of communications anytime in the way indicated at each communication received or by sending an e-mail to gdpr@barcelonabeta.org

Legitimation: The legal base for the treatment of your data is the consent that is considered granted when you provide us with your data and accept this data protection policy.

Deletion period: The data will be erased once your request has been meet. The data for the sending of information of interest will be kept indefinitely until you request its deletion.

 

2.2. INTERESTED AT PROJECTS OF ENQUIRY

The personal data that that you provide us to participate in a BarcelonaBeta research project will be processed for the following purposes:

  • The creation of a directory of candidates to participate in research projects.
  • To assess the suitability of the candidates based on their age, physiological characteristics and family medical history.
  • To manage the communications related with the projects that can be of your interest.

Legitimation: The legal base for the treatment of your data is the consent, granted by registering for candidate and the legitimate interest of BarcelonaBeta to send communications of interest.

Deletion period: Your personal and health data will be kept indefinitely until you request its deletion.

 

2.3. PARTICIPANTS AT PROJECTS OF ENQUIRY

The personal data of the participants in research projects will be processed for the following purposes:

  • To manage the research projects.
  • To manage the communications related with the project in which you participate.
  • The reuse of your data at other research projects related to the study in which you have participated.
  • The purpose of the treatment of your data is to carry out a control of attendance to scheduled visits, which is carried out at the waiting room of the building.

Legitimation: The legal base for the treatment of your data is the consent, granted when participating on a research project and the legitimate interest of BarcelonaBeta to send communications of interest. 

Deletion period: Your personal and health data will be kept indefinitely until you request its deletion.

 

2.4. PARTICIPANTS’ RELATED ONES

The personal data of the relatives of the participants in research projects processed for the following purposes:

  • To contact Pose at contact with the affine at case that was necessary for the appraisal of the surveys of the participant.
  • To manage the projects of enquiry.
  • To manage the communications related with the project at which take part as a affine.
  • The purpose of the treatment of your data is to carry out a control of attendance to scheduled visits, which is carried out at the waiting room of the building.

Legitimation: The legal grounds for the treatment of your data is the consent awarded and the legitimate interest of it BarcelonaBeta for the sending of communications of interest.

Deletion period: Your personal and health data will be kept indefinitely until you request its deletion.
 

3.- Who will we communicate your personal data to?

The BarcelonaBeta Foundation will communicate your data in the following events:

  • By legal obligation: to the tax administration for the payment of taxes, to judges and courts that request it by judicial means.
  • Transfer required to conduct the services contracted: financial entities to execute the applicable collections and payments. We inform you that your data may be transferred to Pasqual Maragall Foundation, the collaborating entity of the BarcelonaBeta Foundation with whom it shares projects, services and provisions.
  • The “Curriculum Vitae” obtained from candidates for research positions may be communicated, according to their profile, to organizations, companies or institutions, at both a national and an international level, with which the BarcelonaBeta Foundation has agreements or preliminary agreements of collaboration or common projects, so that they can assess their suitability as candidates.

International data transfer: the BarcelonaBeta Foundation will not carry out any international transfer of your data.

 

4.- What are your rights in terms of data protection and how can you exercise them? 

Any person has the right to obtain information about which of his/her data are being processed in an organization. For this purpose, the Foundation indicates your rights below:

  • Right of access, rectification and erasure: the interested parties have the right to access their personal data, and to request the rectification of inaccurate data or, when applicable, to request their erasure when, among other reasons, data are no longer necessary for the purposes they were collected for.
  • Right to restriction of processing: under certain circumstances, you may request the restriction of your data processing, in which case data will only be stored for the exercise or defence of complaints.
  • Right to object to processing: under certain circumstances and for reasons related to your specific situation, you may object to the processing of your data. The Foundation will stop processing the data, unless for compelling legitimate reasons, or the exercise or defence of potential complaints.
  • Right to data portability: you will have the right to receive the personal data concerning you in a structured, commonly used and machine-readable format when: a) the processing is based on consent or on a contract, and b) the processing is performed by automated means.
  • Right to lodge a complaint with a supervisory authority: we inform you of your right to lodge a complaint with a supervisory authority (AEPD - www.aepd.es) in the event that the exercise of your rights hereby indicated has not been met.

In order to exercise the above-mentioned rights, you may contact us through postal or electronic mail to the addresses indicated in section 1, identifying the information below in your request:

  1. Applicant’s data (name and surname(s)).
  2. Contact address.
  3. Right to be exercised.
  4. Specific data based on which your request is made.

Within a maximum of one month, we will solve your request by notifying you through the same means that was used initially.

 

5.- What security does the BarcelonaBeta Foundation apply in the treatment of your data?

Taking into account the condition of the technique, the costs of application, and the nature, scope, context and purposes of the processing, in addition to risk of varying likelihood and severity for the rights and freedoms of the natural persons, the BarcelonaBeta Foundation will apply appropriate technical and organisational measures to ensure a level of security appropriate to the risk, which prevent the destruction, loss or accidental or illicit tampering of personal data transferred, preserved or processed otherwise, or the unauthorized disclosure or access to such data.

 

Privacy Policy - E-mail confidentiality

All e-mails sent from BarcelonaBeta Foundation domains may contain confidential or legally protected information and are exclusively addressed to the person or entity to which it is addressed. The content of these messages do not imply any commitment by the sender. If you are not the final recipient or person in charge of collecting it, you are not authorized to read it, retain it, modify it, distribute it, copy it or reveal its contents. If you have received an email by mistake, please inform the sender and remove the message and the attached material that may contain from your system.